| LHON COLLECTIVE | CA | 1 | 2024 | $9,000 |
| PEDIATRIC BRAIN TUMOR FOUNDATION OF THE UNITED STATES INC | NC | 1 | 2024 | $9,000 |
| NATIONAL FOUNDATION FOR ECTODERMAL DYSPLASIAS | IL | 1 | 2024 | $9,000 |
| SUMAIRA FOUNDATION | MA | 1 | 2024 | $9,000 |
| ALLO HOPE FOUNDATION | AL | 1 | 2024 | $9,000 |
| OXALOSIS AND HYPEROXALURIA FOUNDATION | NY | 1 | 2024 | $9,000 |
| CURE JM FOUNDATION | VA | 1 | 2024 | $6,750 |
| ANGELMAN SYNDROME FOUNDATION INC | IL | 3 | 2023 | $42,500 |
| TEAM TELOMERE INC | ID | 2 | 2023 | $31,100 |
| PHELAN MCDERMID SYNDROME FOUNDATION | FL | 2 | 2023 | $29,000 |
| DREAMSICKLE KIDS FOUNDATION | NV | 3 | 2023 | $27,500 |
| THE MARFAN FOUNDATION INC | NY | 1 | 2023 | $15,000 |
| LYMPHANGIOMATOSIS & GORHAMS DISEASE ALLIANCE INC | FL | 1 | 2023 | $15,000 |
| BEAUTIFUL YOU MRKH FOUNDATION | MD | 1 | 2023 | $15,000 |
| ECD GLOBAL ALLIANCE INC | LA | 1 | 2023 | $15,000 |
| COALITION FOR USHER SYNDROME RESEARCH | MA | 1 | 2023 | $15,000 |
| NEW ENGLAND HEMOPHILIA ASSOCIATION INC | MA | 1 | 2023 | $14,179 |
| IMMUNE DEFICIENCY FOUNDATION | MD | 1 | 2023 | $8,600 |
| NR2F1 FOUNDATION | MI | 1 | 2023 | $8,600 |
| HEREDITARY NEUROPATHY FOUNDATION INC | NY | 1 | 2023 | $8,600 |
| NATIONAL ATAXIA FOUNDATION INC | MN | 1 | 2023 | $5,100 |
| CHARCOT-MARIE-TOOTH ASSOCIATION | PA | 1 | 2023 | $5,100 |
| COFFIN-SIRIS SYNDROME FOUNDATION | WA | 1 | 2023 | $5,100 |
| CONGENITAL HYPERINSULINISM INTERNATIONAL | NJ | 2 | 2022 | $26,137 |
| CYSTIC FIBROSIS RESEARCH INSTITUTE | CA | 2 | 2022 | $25,000 |
| BLEEDING DISORDERS ALLIANCE ILLINOI S | IL | 2 | 2022 | $25,000 |
| FOUNDATION FOR SARCOIDOSIS RESEARCH | IL | 2 | 2022 | $22,500 |
| HELPING HANDS FOR GAND INC | AL | 1 | 2022 | $15,000 |
| COMBINEDBRAIN INC | TN | 1 | 2022 | $15,000 |
| MYHRE SYNDROME FOUNDATION | TX | 1 | 2022 | $14,865 |
| RAYMOND A WOOD FOUNDATION INC | MD | 1 | 2022 | $13,921 |
| YOUNGTIMERS INC | CA | 1 | 2022 | $8,276 |
| GLOBAL FOUNDATION FOR PEROXISOMAL DISORDERS | OK | 1 | 2022 | $7,500 |
| INDO US ORGANIZATION FOR RARE DISEASES | VA | 1 | 2022 | $7,500 |
| PRADER-WILLI SYNDROME ASSOCIATION | FL | 1 | 2022 | $7,500 |
| ALAAFIA WOMEN | WI | 1 | 2022 | $7,500 |
| FIBROUS DYSPLASIA FOUNDATION INC | MD | 1 | 2022 | $6,560 |
| GLOBAL PEDIATRIC MDS INITIATIVE INC | NY | 1 | 2021 | $58,000 |
| AKARI FOUNDATION | TX | 1 | 2021 | $23,000 |
| SICKLE CELL TEXAS MARC THOMAS FOUNDATION | TX | 1 | 2021 | $15,000 |
| UPLIFTING ATHLETES INC | PA | 1 | 2021 | $15,000 |
| ANGIOMA ALLIANCE | VA | 1 | 2021 | $15,000 |
| SICKLE CELL DISEASE ASSOCIATION OF ILLINOIS | IL | 1 | 2021 | $14,955 |
| UNITED MITOCHONDRIAL DISEASE FOUNDATION INC | PA | 2 | 2021 | $12,500 |
| DUP 15Q ALLIANCE | NC | 1 | 2021 | $7,500 |
| DDX3X FOUNDATION | DE | 1 | 2021 | $7,500 |
| RAREKC FOUNDATION | KS | 1 | 2021 | $7,500 |
| E WE FOUNDATION | AL | 1 | 2021 | $7,500 |
| BRAIN RECOVERY PROJECT | CA | 2 | 2020 | $34,200 |
| SATB2 GENE FOUNDATION INC | GA | 2 | 2020 | $22,500 |